Monday, July 21, 2014

Advocate with Us This Week for Women and Alzheimer’s

Women are at the epicenter of the Alzheimer’s epidemic. Two-thirds of Americans with Alzheimer’s are women. And 60% of Alzheimer’s caregivers are women. 

This week, we have two chances to spread the word and advocate on behalf of all women, especially those dealing with Alzheimer’s. You’re invited to attend, and meet two area congress members hosting events with women in mind. Representative Sean Patrick Maloney is hosting an Economic Advancement Forum, When Women Succeed - America Succeeds, Saturday, July 26 from 10 a.m. to Noon at the Orange County Emergency Services Center, Goshen. Congresswoman Nita Lowey will host the lecture, Silent Dangers: Environmental Impacts on Women’s Health, with Dr. Linda Birnbaum of the National Institutes of Health, Monday, July 28, at Noon, Mercy College, Dobbs Ferry.

Join us. Talk to your elected officials about Alzheimer’s disease. The time is now.

Call Michele Muir at 800.272.3900 for more information about either of these events, or to join our advocacy membership. We hope you get involved!

Monday, July 7, 2014

Wine & Music Mini Fest
to benefit the Alzheimer's Association




Friday, July 25, 2014
7 to 10 p.m.
(rain or shine)
Early Birds Welcome!

Warwick Valley Winery
114 Little York Road
Warwick, New York

Join us for an open wine bar and silent auction
and enjoy a three-hour music fest!


Performances by:


The Shoe Leather Express

Side by Side


Food, catered by The Winery Cafe, will be available for purchase.

Tickets are $25 each ($12.50 is tax deductible) / $35 each at the door

Tickets are now on sale.  For more information and to purchase tickets, please call
the Alzheimer's Association at 800.272.3900.







Tuesday, June 10, 2014

Missing Adult Alert!

June 10, 2014 - Active Alert - Edward Rodriguez, 70, from Central Islip

Missing Vulnerable Adult Alert
Please Spread The Word! 

Edward Rodriguez, 70, is from Central Islip on Long Island. He is a white male and is believed to be driving a 2008 Hyundai Sante Fe with New York license plate EDL-2509.  Click here for more details.

UPDATE:    Good news.  Mr. Rodriguez has been found and is safe.

Monday, June 2, 2014

NYT: Alzheimer’s, a neglected epidemic. Carol Monteleoni: Speak up loudly now

In a recent opinion voiced in the New York Times by writer Ginia Bellafante, the Alzheimer’s epidemic, like the HIV-AIDS epidemic and movement, needs a strong voice like that of Larry Kramer, the LGBT rights activist and co-founder of the Gay Men’s Health Crisis.  Alzheimer’s Association – Hudson Valley/Rockland/Westchester, NY Chapter Board member and Program Committee chair, Carol Monteleoni, commented in response to Gina’s story.

“People with dementia, their families and caregivers need to speak up loudly. Only 50% of people with dementia ever get a formal diagnosis, and the degree of ignorance and/or avoidance of the disease by the medical profession is a national scandal. Hospitalization for a patient with dementia can be a nightmare.

“Fortunately there are some communities, hospitals, and medical specialties working to improve the care of patients with dementia, support caregivers, and take responsibility for this group of devastating and increasingly prevalent diseases.

“The Alzheimer's Association website, www.alz.org, and locally www.alz.org/hudsonvalleycontain a wealth of information for persons with Alzheimer’s and other dementias, caregivers and professionals. In addition to advocating for government funding of research and improved care, we need to demand that our medical providers and health care institutions address the dementia epidemic, which will only worsen as the baby-boomer generation ages."

-  Carol Monteleoni

Read the full story here:  http://nyti.ms/1h0vZ9q

Monday, May 19, 2014

My Gift to My Son

By Randye Sundel

My mom died last August at the ripe old age of 93. Living a long life is generally what we aspire to do; but in her last years, mom didn’t live as much as she existed. She had Alzheimer’s disease and slowly became unrecognizable to herself and to those of us who knew and loved her.

Dotty Goodman was not a candidate to develop Alzheimer’s disease. At least that is what I, in my innocence, believed. After all, she was so smart. She graduated early from Hunter College…completed the Sunday New York Times crossword puzzle in ink each and every week…and read voraciously. Mom exercised her mind and her body. She remembered every moment of her life and that of everyone else’s. She could sing every lyric to every song of her era, and put game show contestants on “Wheel of Fortune” to shame when she solved each puzzle before they did. There was no way my mom would ever get dementia. Not my mom.

I’ve seen Alzheimer’s disease up close, and I wouldn’t wish it on anyone. I’ve experienced being a caregiver for a loved one with Alzheimer’s, and I wouldn’t wish that on anyone either. It robs the identity of those afflicted, and steals any illusion of peace of mind from their family members. There is always another bump in the long and winding road taking its toll on both the patient and the caregiver.

Profound sadness, frustration and helplessness are some of the emotions we caregivers experience. Inability to focus, constant anxiety and physical and mental fatigue characterize the caregiver’s days. We worry about money running out to care for our loved ones. We worry about our ability to keep juggling all the other responsibilities in our lives. And we worry about what all of this worrying is doing to us physically and emotionally.

Knowing what I know about caring for someone with dementia, it was important to me to sit down and talk about my own health with my only child, my adult son. My dad had Parkinson’s disease with dementia. My mom had Alzheimer’s disease. It would be na├»ve and irresponsible of me to not consider that my present good health might be in jeopardy in the future.

My son tried to wave me off as I attempted to address this uncomfortable subject; but I proceeded. I told him that if he observed changes in me that suggested my mental state was compromised, he was to act whether I liked it or not. He was to do whatever he had to do; and he was to do it without guilt. I told him that I knew he loved me and would always want what was best for me. I said that I trusted him, and that what was best for me was for him to live his life as unburdened as possible.
  
Maybe I’ll be one of the lucky ones. Maybe I’ll leave this world sharp as a tack singing “Won’t You Come Home Bill Bailey” at the top of my lungs while kicking up my heels. But if that’s not my fate, my son will remember the brief conversation we had in my house when I was of sound mind and able to tell him my wishes. That talk may be the greatest gift I’ll ever give him. 

Monday, May 5, 2014

Football Fundraiser Scores More Than $20,000 for Alzheimer's


FOOTBALL FUNDRAISER SCORES MORE THAN $20,000
FOR ALZHEIMER’S

Blondes, brunettes and beyond united to benefit the care, support, advocacy and research provided by our
Hudson Valley/Rockland/Westchester, NY Chapter

New Rochelle, NY - May 2, 2014 - Team BLONDES reigned victorious on the field at the Alzheimer’s Association BLONDES vs. BRUNETTES flag football game Saturday, April 26 at New Rochelle High School in New Rochelle.  Blondes, brunettes, real women of all colors and even a few gents united in an effort to raise funds and increase awareness of Alzheimer’s disease in Westchester. Funds raised have reached over $22,000 and will benefit local Alzheimer’s disease care, support, advocacy and national research.

Saturday afternoon football commentator, Andy Cahn of Armonk, gave his rundown on the event: “The game was a hard-fought, exciting defensive battle. Blondes led 12-0 at half-time. Brunettes came back in the 2nd half to tie the score in the fourth quarter. Not to be outdone, the Blondes took the lead for good with about 2 minutes to play. Several desperate attempts by the Brunettes failed so the Blondes prevailed 18-12. After a lot of hugs, players and volunteers retreated to NoMa Social to celebrate the success of the day.”

Michael Kalinowski, 23, of White Plains, the event top fundraiser said, “I’d never heard of the Alzheimer’s Association, and happened to be at the Beechmont Tavern for a game kickoff event. I took this as a sign of how I could get involved and do some good for people who are affected by this disease that claimed the life of my grandmother, one of the most important people in my life, just last year. They needed a coach for the Blonde team, and I decided I could go blonde for a day. At that point I was sold and committed to bringing in as much money as I could and coaching the Blondes to victory. And we all did just that!”

New Rochelle community leader, Ms. Dozene Guishard, said, “The BvB football game brought us all together in New Rochelle – at the largest public high school in Westchester.   We all worked hard, but special thanks go to Coach Lou DiRienzo, Athletic Director Steve Young, and House Principal III Ms. Vera Cheek, who were instrumental in making this event happen. Our nationally recognized cheerleaders, the football team, the Black Culture Club, Brain Awareness Club, Christian Club, Mentoring Club, and the community all came together for a great cause and raised much needed funds for the Alzheimer’s Association. The coaches are already talking about next year.”

Minutes before game start, New Rochelle’s Mayor Noam Bramson met with the captains of both football teams and referees in the center of the field for the coin toss. Bramson proclaimed the weather machine was responsible for the bright, sunny afternoon.

BvB event sponsors included The Beechmont Tavern, The Bristal Assisted Living, Diana's Angels Home Care, Inc. and Altium Wealth Management; Catherine H., and Angel Rox. 

Event organizer and Blonde team captain, Ms. Sydney Binney of Tarrytown, added a few extras to the event including raffles, a kid’s obstacle course and an after party at NoMa Social at the Radisson New Rochelle.  Sydney plans a BvB Celebration Party at the Beechmont - White Plains on May 21st from 6 - 9 pm.  Donations will be accepted thru end of May.

The first Blondes vs. Brunettes game was held in Washington D.C. in 2005.  Since its inception, Blondes vs. Brunettes has expanded to games in Austin, Buffalo, Chicago, Dallas, Houston, Kansas City and New York.  Together, Blondes vs. Brunettes have raised more than $2 million in an effort to tackle Alzheimer’s disease. 

To find out more about programs, services, advocacy and events provided by   the Alzheimer’s Association – Hudson Valley/Rockland/Westchester, NY Chapter, visit www.alz.org/hudsonvalley or call 800.272.3900.

***

2014 Blondes vs. Brunettes® Westchester Committee

Sydney Binney,  Alzheimer’s Association
Elizabeth Colquhoun,  Reader’s Digest
Elizabeth Downing,  Alzheimer’s Association
Rebecca Kaufman,  MasterCard
 Jamie Johnson,  American Golf Association
Michelle LaFond,  Regeneron Pharmaceuticals
 Kate Minieri, Cardinal McCloskey Community Services
Ally O’Boyle, Pace University
 Vincent Vicchio, 
Cardinal Mortgage

With special assistance from Alzheimer’s Association Board Members:
Dozene Guishard 
JoAnn Kroner

Thank you to everyone at New Rochelle High School,
Most especially Athletic Director Steve Young
and Coach Lou DiRienzo, as well as the
New Rochelle Cheerleaders and Football Team

With appreciation to Vera Cheek and the students in the
Black Culture Club, Brain Awareness Club,
Christian Club and Mentoring Club

Special thanks to the Pace University
Chapter of Sigma Iota Chi

Thank you photographer, Michele Muir and
Videographer, Rob Johnson 

CONTRIBUTORS

American Golf
Brace Urself Designs
Cablevision
Chic Designs by Yvette
CostCo
Diamond Club International, NYC
Elements Massage – White Plains
James Deagan Salon – Dobbs Ferry
Libra C. Banke, Consultant Mary Kay Cosmetics
Modell’s Sporting Goods
Planet Fitness
Rockland Bakery
SoulCycle
Sparx Salon – Pleasantville
Spincredible – Ardsley
Starbucks – New Rochelle
Alan Straub, Pix11 Local Sales Manager
Venture Photography

Special thanks to our team of officials:
Bob “Goldie” Goldstein – Referee
Rob McCarthy – Umpire
Tom Herber – Head Linesman
George Zablow – Field Judge

A big shout-out to Jason and Michael Cebula, Physical Educators
in Hamden School District, Hamden CT & members of the Connecticut Cadre of Physical Educators & Trainers, for leading
our smaller guests in a fun and challenging time on the

fun-stackle obstacle course!


With Thanks to Our Generous
Sponsors and Partners: